Saturday, January 21, 2012

Update from Home

With the busyness of home life and the fact that Ryan takes pretty much all of our time, I have not been able to update the blog as often as I would like. But I will try my best to at least give weekly updates. Well let me start by saying that being home is much better than living at a hospital with the lack of privacy, frequent travel, and time away from Michelle that came along with it. That being said, being home has been tough. Ryan is doing well but it is a daunting task to take care of her on a daily basis. She requires meds around the clock and maintaining/managing her equipment is an ongoing process. Though we couldn't be more excited and thankful to finally have our baby girl home, it doesn't take away the struggles we face trying to give her the best care possible. Please pray that home nursing care will work out for us. We are looking to have help for just 2 nights a week so that Michelle and I can get out of the house together. We need someone that we can really trust wholeheartedly. We are very picky and do not want to leave Ryan with just anybody. Also pray that Michelle and I will make it a priority to spend time with God and each other. With the stress that comes along with bringing home a sick baby, it's been easy to forget the importance of these things. And of course pray for Ryan as she continues to fight as we travel down this difficult road. Thanks, Jared

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