Hi all :)
We are so sorry that we have not sent out an update in a little while. But Ryan is a little rockstar! She is off her Ketamine drip, which was a HUGE feat! We are currently weaning her last two drips and then we can just focus on her vent and trach training and then...HOME!!! No date mentioned, but the discussion of home is out there!! Ryan has been also doing some awesome baby things as well as she daily feels better and better. She smiles, cries and batts at toys. Reaching for a toy is a little bit of a struggle for her, but it is so sweet to see her little arm shake as it raises up to touch the rattle. She is just so determined and strong!! She is also taking a pacifier here and there which is so sweet to see.
On a side note we just feel so blessed to be able to spend Christmas with her!! A few months ago we could not even imagine coming out and through all that we have and God has carried us and her through it all. We still have a road ahead of us, but we know God will carry us through just as He has so far. God is so gracious. -M