Sunday, August 14, 2011

Tube removal

As you all know, Ryan had her intubation tube removed yesterday. And although she continues to do better than expected, there were a lot of concerns that we had with the removal of the tube. For one, it's very common for chromosome babies to have floppy trachea's. This could have forced the doctors to perform a tracheotomy and Ryan may have required the use of a ventilator for the rest of her life. So you can imagine what a special moment it was to see her take her first unassisted breath and how amazing it was to hear her cry for the first time. We had hoped for that moment since the day she was born, and Michelle and I were both overjoyed as if she had just arrived. She is such an incredible little girl and Michelle and I feel so blessed that she is ours. Thanks to all of you for the continued prayer. We could not make it through this tough time without the love and support of our family and friends. Please continue to pray for her speedy recovery. Ryan is currently on regular feedings through an OG tube and we hope to be bottle feeding her very soon. With love, Jared and Michelle


  1. WOW Jared----that just gave me goosebumps like crazy :) we are thrilled and continue to praise God and be so encouraged by you and this amazing little girl!!!!! That is wonderful news and we totally rejoice with you and continue to pray for ALL of you!!!


  2. So awesome! Can't wait to see her again! What a strong little girl! :)

  3. So pleased to read about her progress. Still praying for your family!